Multiple sclerosis healthcare websites you need to add to your bookmarks now
The internet is a scary place. Especially when it comes to healthcare information. We’ve all done it, googled “headache at base of neck” and been e-diagnosed with everything from mild dehydration to an advanced stage disease.
We all know that one of the joys of multiple sclerosis is that symptoms come and go change all the time. That means sometimes you may need to turn to Doctor Google.
At Emilyn we want you to be able to take control of your health and your symptoms.
So who can you trust?
We’ve compiled a list of the most trusted, objective healthcare information sources on the net. They’re broken into different types of organisations. Here we’ve covered charities and associations, government/public bodies, private companies.
What about blogs?
We love blogs and celebrate bloggers sharing their experiences but they are much more opinion and experience based. They’re great to find other people who know what you’re going through but don’t provide an unbiased view. We'll be reviewing our favourite bloggers soon.
Multiple sclerosis charities and societies
Charities and societies consistently produce high quality, specialist multiple sclerosis advice.
It’s often their information that you’re given by doctors and nurses when you’re first diagnosed.
They also have programmes to train healthcare professionals so you can be sure that the information is high quality.
Their information is often written in partnership with people who have MS and experts. This means it’s truthful to people’s real life experiences and medically accurate.
A UK based charity who have a range of information including: symptom management emotional support, financial support, advice on supporting someone with MS and everyday life. They also have a support line and extensive online community.
Shift.ms is the social network for people with multiple sclerosis. They have an active online community which is an excellent source of information. They also have their MS Reporters series which is high quality expert videos and interviews on everything from clinical trials to breastfeeding.
Their founder George Pepper has MS and writes for the Huffington Post and is a regular speaker in the media and at conferences about MS.
A comprehensive guide to everything you need to know about MS. Includes everything from symptoms and diagnosis right through to living well and getting involved in research. Also includes information translated in Spanish.
Local MS services and information to Canada. Also translated in French
Something a bit different. On healthtalk.org you can find out about what it’s like to live with a health condition, by watching other people share their stories. It’s a useful source of information about people’s experiences to help you understand a condition or symptom.
The stories are gathered by academic researchers and are partnered with Oxford University so you can be sure they’re a quality read.
Government bodies and educational institutes
Government websites and educational or research institutes are also a good source of information about multiple sclerosis. Their information is written and reviewed by experts and updated regularly, which is an important factor because advice changes regularly.
The National Library of Health’s service to provide high-quality and relevant health information. It covers all types of healthcare as well as specific information about MS. They collate useful information from other sources around the internet too.
They also have a handy tutorial for evaluating healthcare information that you find online.
The UK’s National Health Service website. It provides well laid out, easy to understand and accurate advice about all areas of medicine. The advice is impartial and updated regularly. You can see on all pages when they were last updated.
A user friendly site with all sorts of health information on it. It’s certified by NHS England’s Information Standard so can be trusted. All articles and topics are evidence-based and it aims to help patients proactively manage their healthcare
Private sites and medical companies
These sites tend to have large volumes of information on everything from specific information about drugs to tips about straightening your hair. They are useful for researching generic topics but have lots of pages and content which can be confusing to navigate.
WebMD is a privately run medical advice website. It has a lot of content on all aspects of healthcare. It has multiple sclerosis specific information as well as lifestyle and mental health advice. A word of caution, there is a lot of information online so be careful you don’t get in too deep and worry yourself.
Mayo Clinic is an academic medical centre and has a comprehensive care area on its website. It includes A-Z guides of symptoms and conditions so can be helpful if you’re experiencing new symptoms or condition progression.
It is geared towards Mayo Clinic patients but provides impartial information to help patients understand their condition and treatments.